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Pulmonary Hypertension / Pulmonary Fibrosis Support Group

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Breathe For Your Life, Inc is a pulmonary hypertension and pulmonary fibrosis support group open to PH/PF patients, their caregivers and loved ones, and health care providers. The purpose of this support group is to provide those desirous with a positive, supportive environment to share and to hear about new advancements in the treatment of pulmonary hypertension and pulmonary fibrosis. Information and resource sharing is a key component of the support group's activities.

WE ARE HERE FOR YOU.

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Pulmonary Hypertension

Pulmonary Hypertension (PH) is a rare lung disorder. It is continuous high blood pressure inside the lungs. The blood vessels in the lung have gotten thicker (some totally blocked) for no apparent reason (Primary Pulmonary Arterial Hypertension – PPAH) or due to other illness (Secondary Pulmonary Arterial Hypertension – SPAH). This narrowing of the blood vessels increases the pressure of blood flow to the lungs and the amount of blood flow is reduced. This causes the right side of the heart to work harder. There is a reduction in blood circulation and the patient becomes “symptomatic”, experiencing breathlessness, lightheadedness, fatigue and/or other symptoms. There are 300 new cases of PH diagnosed yearly. In 2002, there were 260,000 hospitalizations of people with PH in the US.

Pulmonary Fibrosis

Pulmonary Fibrosis (PF) is a restrictive lung disease. PF is lung scarring in the interstitium tissue of the lung. It is one of 130 – 200 Interstitial Lung Disease (ILD). PF causes the lung tissue to thicken and become stiff. This condition keeps oxygen from entering the bloodstream. There are many known causes of PF. However, when no cause can be found, it is called Idiopathic Pulmonary Fibrosis (IPF). There are 50,000 new cases diagnosed annually, more than 2,000,000 people in the U.S. and 5,000,000 worldwide suffer from this disease. Symptoms include, but not limited to, breathlessness, fatigue and a dry hacking cough.

 

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